Jamie Lohmann: It’s awful to see kids with kidney disease

RTL Boulevard and the Kidney Foundation collaborate to help children with kidney disease. Because growing up with kidney disease requires an incredible amount of it. In addition, kidney damage is lifelong. Jamie Loman, 35, knows better than anyone how to live with kidney failure. In 2018, his life was turned upside down overnight when he was told he was suffering from acute kidney failure. “So you’re suddenly no longer a healthy young man, you’re sick and dependent,” he told RTL Boulevard. Meanwhile, Jamai has got a donated kidney for a few years and is doing well. “More research needs to be done on kidney disease to give children with kidney disease a better future.”

“It went really well for me,” Jamai says of the lead-up to finding out he had acute kidney failure. “I just had a contract with RTL, and I started several new programs. I was allowed to harvest the seeds I planted.” Program recordings Better late than never He had to travel abroad for a month and have a medical examination. “just to make sure.” Then my group was told that he was suffering from acute kidney failure. “Then everything goes really fast and all kinds of terms are used in the hospital. You are no longer a healthy young man, but you are sick and dependent.”

Bart de Graaf was Jamai’s first association with kidney disease, who developed a developmental disorder due to his kidney disease and died young. “Then you think very quickly: Is this my future, too?” Jimmy says. “I shared all my fears and fears with my doctor. He immediately said that my fate was not necessarily the same as my Bart de Graaf.”

When Jamai’s kidneys were examined, it turned out that his body had produced a substance. “And this turned on my body. You can’t help it. Just bad luck.” A week after his diagnosis, it was already clear that a new kidney was needed. Several of those close to him – an aunt, nephews, and a sister-in-law – wanted to donate a kidney. “In the end my brother-in-law came out as the best match.” Since then, the presenter has, in his words, “restored his life.”

Before having a kidney transplant, Jamai had to undergo dialysis. A treatment in which an artificial kidney removes waste and extra fluid from the blood. “Three times a week, for five hours. That’s absolute hell.” He finds it difficult to explain why he is “stupid”. “You’re sitting in a chair, but it feels weird, and so dependent. You just feel like you don’t really have to be there. It also makes you really tired because your body is being artificially ‘cleaned’ in record time.”

A donor’s kidney often doesn’t last a lifetime, but Jamai doesn’t really think about it: “Of course there are times when it crawls into me, but I got that kidney to enjoy life, so I’m going to do it for as long as possible.” Furthermore, he hopes for new developments in the treatment of kidney disease. “It is indeed possible to grow small kidneys from stem cells in the laboratory. In the long run, we hope that the damaged kidneys will be repaired in this way.”

Jamai was lucky with his donated kidney, which allowed him to quickly resume his life. But unfortunately this is not the case for everyone. It is especially difficult for children with kidney disease. Often kidney disease cannot be seen from the outside. “When people know you have kidney disease, they often don’t understand what it means and how much it affects you,” Jamai explains. Children with kidney disease have little energy, can’t eat everything they like, have to eat a lot of medication and sometimes dialysis, which is exhausting.” 1 in 20 children is at risk of kidney damage, for example due to high blood pressure. or premature birth.

This is why the Kidney Foundation created Jonge Helden to help children with kidney disease. Jamai finds it “appalling” to see children unable to fully function due to their kidney disease. “However, we should not underestimate how resilient they can be. Of course, there are difficult moments, but they do not give up. Every day these activists push themselves to the limits by simply living. They are little heroes!”

Jamai believes it is important for people to become more aware of how difficult it can be to live with kidney disease, especially for children. “The current picture has to change. In addition, a lot of research is still needed to improve the quality of life of children with kidney disease and ultimately to treat children. We must continue to support them, so that they do not become victims, but special children with special cases.” What Jamai hopes above all for is a healthy future for the young champions. “If they are my age, I hope the kidney disease will be cured.”

In the Netherlands, one in twenty children is at risk of developing kidney damage. RTL Boulevard, with Jamai, among others, is taking action for the Kidney Foundation to help these little heroes. Because growing up with kidney disease requires an incredible amount of kids. Also because kidney damage is lifelong. The Kidney Foundation invests in pioneering research to treat kidney disease. Do you also support Little Heroes? Text HELD to 7171. Or donate via www.nierstichting.nl.

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